Welcome to our life!! This is our journey through life raising a child with Type 1 Diabetes and all the craziness that ensues!!!

Tuesday, September 6, 2011

like a cheezy Cher song

Just like the song I wish I could turn back time.I wish I could find a way.Just for one day

I wish I could just go back to before diabetes entered our lives.

I wish I could go back to a time when I had a carefree 3 yr old.

Can you imagine if we were allowed one day to just experience life again before the big D???

Just imagine what it would be like??

Can you Imagine?

I know for me I have a hard time imagining this, it has all become second nature to me.

I know that before Madison was diagnosed that I never imagined the life we now live.But I dont think I would know how to go back to a normal life.

Imagine not piercing your childs skin countless times a day?

Imagine just putting dinner on your childs plate without measuring the food? I dont think I could as I caught myself measuring a playdates food the other day.

Imagine just walking out the door with your purse and child?

Imagine not having a cupboard or drawer designated for your childs lifesustaining supplies?

Imagine not dealing with all the headaches of insurance companies?

Imagine sending your child off to school with the only worry being that they learn lots and make friends?

I know it is hard to imagine this as it is now our normal but I know that one day soon our old lives will be our new lives because there will be a cure. I know this because I keep imagining the day I hear it on the news or get the call from the doctors office.That day will come keep imagining it and it will become reality.

Sunday, May 22, 2011

Envy

Tonight is just one of those nights where I am so full of envy of other parents that don't have kids with Type 1.Tonight I started thinking about envy and how much of it I have everyday.

I just wish life was easier.

 I envy parents that can allow their child to have sleepovers or the children that are able to go to sleepovers and not have to be afraid that no one will be there to take care of them

I envy the simplicity of life such as being able to just grab your kids and jump in the car and go.I laugh when I hear people complain about how much time it takes just to get the kids in the car to go anywhere. Well try to do that plus make sure you have the meter and insulin and of course juiceboxes and snacks for if they go low oh! wait a minute we also need the glucagon just in case and better grab the glucose gel in case they are unable to swallow oh! and some free food oh!! and check your blood sugar before we go to make sure we are all good.

I envy other parents that can put their kids to bed and pretty much know they are going to wake up in the morning.With diabetes there is no guarantee of  blood sugars not crashing while your child sleeps.

I envy other parents that don't have to constantly pierce their childs skin with needles everday.

I envy everything about a life without diabetes.But with all that said I  love my daughter more than anything in the whole world and would not change a thing I do. I do everything I do for her.With or without envy tomorrow  is going to arrive early so I must go to bed but first off to check her sugar. Goodnight and thoughts of good numbers and lots of sleep in the days ahead

Saturday, May 21, 2011

Life Lately

Its been along time since I posted on here we have been really busy.Getting ready for the Telus Walk To Cure Diabetes and a coin drive at Madisons school plus of course just the normal craziness of the D life. 

We had our last checkup at childrens on April 19th and I didnt get the go ahead for a pump but we did switch to basal bolus using injections.For those reading that don't know that is basically imitating what a healthy pancreas does but using injections.So Madison gets a shot of longacting insulin at bedtime and now whenever she eats food containing carbs she gets a shot.It is alot more work as we have to be totally precise at carb counting but we are seeing much better blood sugar levels. It also means that I am at the school everyday for lunch to give a shot plus I am also called to give a correction shot at 10 or 2 if she needs one. So basically I spend most of my day running back and forth to the school.I am finding it really exhausting so I am looking forward to summer break in 5 weeks.

Our endo did tell us that he will give us the go ahead for the pump at our next visit in October if Madisons A1C comes down to within range. I am really looking forward to the pump.She will be able to operate the pump herself at school with the supervision of a trained seta and myself being on the phone during operation of the pump. I can only dream about the freedom right now. Imagine not holding my cell phone like it is the most precious thing in the world; waiting for that phone call from the school.But for now It is what it is .

However I do believe the kids in the class would miss me as I get hugs from 10 little girls upon entering and exiting the class.I have been instructed to make sure I give one little blonde beauty a bigger hug than the rest.I think she might be a little jealous of other kids hugging her mommy. I also add an entertainment value to lunchtime.  They all love to watch Madison get her shot and all comment on how tough she is.She just loves the attention.I realize I spend way too much time at the school giving shots when a boy in another class came up to me on the playground to tattle on another child. He thought I was one of the supervisors. 

Well it isnt a school day but we are off to another crazy day of  the D life . Will post again soon.Wishing everyone good numbers and lots of sleep in the days ahead.

Saturday, April 2, 2011

The uninvited geust

Dear Diabetes, do you not know you are not wanted? Dont you ever feel unliked? Dont you get the hint you aren't wanted around here?

When you came sneaking up on us two years and a bit ago I never knew what a sneaky bastard you would turn out to be.You came into our lives like a beast causing trouble all the time. You took away our daughters carefree and innocent ways. Now we live by the clock. Tick Tock Tick Tock everything goes by the clock.

Why can't you take a hint?

You stole Halloween from my daughter last year making us spend the night in the emergency room instead of trick or treating. Then today of all days you decide to rear your ugly head on her birthday. Why couldn't you just do what you do everyday and sit in the back ground doing your dirty work.Why I ask why? Couldn't you stand to see her enjoy her birthday? Was it not enough your friend the flu already had us postpone her party by a week? Obviously you didnt think so.

Don't you get it?

Scientists and researchers all over the world are trying to get rid of you. They are preparing for battle to destroy you for good.We are readying our troops too they are called Maddie's Monsters and we will walk to help get you to understand that you are not needed here or wanted.

Mothers and Fathers all over the world are tired of your continous threats that you are going to take our children too young.You have done this before and I know you will do this again.Can't you just leave these kids alone?

So please just take a hint and get the hell out of our lives you were never invited here or anywhere. You are rude and obnoxious and I will keep fighting you til I win and I will win this one.

Saturday, March 5, 2011

The Princess and The Pump: LFAC: The Birthday Bolus

The Princess and The Pump: LFAC: The Birthday Bolus: "Welcome to this week's Sugar Bolus! This week is a very special Sugar Bolus for us here at The Princess and The Pump! Why??? Because th..."

Friday, February 25, 2011

Welcome!!

It has been exactly 2 yrs 3 months and 9 days since that day.The day that changed our lives forever. I will never forget that day .I still remember the feeling in the air that night as we sat at Children's Hospital watching over our 3 year old hooked up to all sorts of machines.Not knowing what tomorrow would bring.Not knowing how much one statement out of a doctors mouth can change your whole world.That day was November 16,2008 and Madison was diagnosed with Type 1 diabetes.
Now two years and a bit later I have decided to start this blog to share our journey with friends and family and of course the online diabetes community. I hope to also spread awareness of this disease and the balancing act it is. So now please forgive my grammar and any future four letter words. Please post any comments I love to hear from you. Thanks